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OIT IN THE NEWS
- New success in treating allergies to peanuts and other foods February 6, 2020
- Allergists See Palforzia as Start to New Era of Food Allergy Therapies February 6, 2020
- FDA approves first treatment for kids with peanut allergy Jan 31, 2020
- Desensitization Gives Some Children With Food Allergies A Viable Treatment Option Jan 2, 2020
- Why Parents Are Turning to a Controversial Treatment for Food Allergies Aug 5, 2019
FOOD ALLERGY OIT TIPS & TRICKS
If you’re feeling frustrated and looking for food allergy OIT tips and tricks to get your toddler or older child to eat their food allergy OIT dose, here’s more OIT dosing ideas than you’ll ever need.
OIT DOSE LOG
Download a Monthly OIT Dose Log to keep track of your daily dosing. This sheet has enough space for 4 allergens.
OIT Support Group on Facebook – Join discussions with others going through oral immunotherapy. You’ll find a supportive community of prospective patients, current patients, and graduates.
Oral Immunotherapy (OIT) Graduates Support Network on Facebook – For parents and patients who have graduated from any Oral Immunotherapy Food Allergy Treatment Program and are navigating maintenance dosing during the years following graduation.
Food Allergy Treatment Talk (FATT) on Facebook – Share and discuss evidence-based scientific research related to improving — and one day, hopefully, eliminating — IgE-mediated food allergies (unrelated to intolerances/sensitivities) in people of all ages.
FOOD ALLERGY COUNSELING
Although OIT may give you a safer life, whether your goal is to be cross-contact safe or free eating, the journey itself can take a mental toll on the allergic person and the whole family. Literally, eating your poison each day is a difficult idea to swallow and can cause extreme anxiety. For this reason, seeking a specialized counselor in the Food Allergy Counselor Directory may help.
FARE – Food Allergy Research & Education enhances the lives of individuals with food allergies empowering them to lead safe, productive lives with the respect of others through education and advocacy initiatives and improved awareness around healthcare options and treatment. (nonprofit)
To decide whether OIT is right for your family, it can be helpful to read about others who have been down the OIT path. OIT is highly personalized and no two journeys are the same. Some will take longer than others. Some will have a bumpier road with setbacks. So we call it a journey. Any step towards tolerance and increasing desensitization is a step towards a safer life, thus an OIT success story.
- Keira – dairy, peanut, tree nuts, seeds, seafood with Xolair
- Neil – egg and tree nuts
- Connor – peanut and tree nuts
PPOIT – PRIVATE PRACTICE OIT
Located within the Food Allergy Treatment Talk (FATT) Facebook group files, you can find a map of reputable, evidence-based OIT treatment locations.
If you are short on funds, participating in a clinical trial is a great way to get the latest treatment and help forward science at the same time. There is no cost, and sometimes they even pay you. Ask your allergist or check the following links.
- Sean N. Parker Center for Allergy & Asthma Research – Stanford’s research and clinical trials.
- ClinicalTrials.gov – a database of privately and publicly funded clinical studies conducted around the world.
The End of Food Allergy (affiliate) by Kari Nadeau and Sloan Barnett – The trailblazing research of Dr. Kari Nadeau at Stanford University reveals that food allergy is not a life sentence, because the immune system can be retrained. Food allergies–from mild hives to life-threatening airway constriction–can be disrupted, slowed, and stopped. Sloan Barnett provides a lay perspective that helps make Dr. Nadeau’s research accessible for everyone. Together, they walk readers through every aspect of food allergy, including how to find the right treatment and how to manage the ongoing fear of allergens that haunts so many sufferers, to give us a clear, supportive plan to combat a major national and global health issue.
The Food Allergy Fix: An Integrative and Evidence-Based Approach to Food Allergen Desensitization (affiliate) by Sakina Bajowala – Discusses how allergies can be managed through sublingual and oral immunotherapy, which retrains overactive immune systems through the precise administration of foods.
Food Allergy Immunotherapy Daily Dose Log Book – 12 months, undated. (affiliate) Track OIT progress and treatment details. Record time and/or amount taken for each dose. Space for reaction and detailed notes. Keep track of dose escalations and reactions.
Zippy: A Story About Oral Immunotherapy (OIT) for Food Allergies (affiliate) by Sakina Bajowala – This children’s book introduces kids to the concept of OIT via the story of Zippy, a race car who is allergic to fuel.
My OIT Journey: How It Worked for Me! (affiliate) by Major Jaimes – Written by a middle schooler who goes through oral immunotherapy.
FOOD ALLERGY TESTING
There are 3 diagnostic tests for IgE mediated food allergies. Together with reaction history, an accurate diagnosis of what you are allergic to can be determined.
2 important points to note about skin and blood tests:
- High rate of false positives
- Cannot determine severity of reaction
Read Dr. David Stukus’ What You Need to Know About Food Allergy Testing.
You can also read about my family’s experience with Food Allergy Testing.
If you’re preparing to do an Oral Food Challenge (OFC) at your doctor’s office, here’s some advice on How to Prepare for an Oral Food Challenge.